"Psychogenic Non-Epileptic Seizures or PNES are attacks that may look like epileptic seizures, but are not caused by abnormal brain electrical discharges. They are a manifestation of psychological distress." Epilepsy Foundation - https://www.epilepsy.com/article/2014/3/truth-about-psychogenic-nonepileptic-seizures.
PNES is a condition that is unfortunately not well understood and poorly known in the medical field still in 2018. For that reason, the path to diagnostic and treatment can be tremendously frustrating and hopeless at time. The Epilepsy Foundation states that among patients who are seen at Epilepsy Centers, up to about 30% show no abnormal EEG brain activity. Those patients are told that their attacks are not Epilepsy and most of the time left with no answer and/or support. The Northeast Regional Epilepsy Group, a program created by Dr Lorna Myers, is making a huge effort to raise awareness about PNES. On their website, a growing list of PNES specialists from different countries and states is available. Relevant information, articles, and webinars are also accessible. Cut and paste nonepilepticseizures.com to access their website.
In addition, if you are looking for a great book to help you better understand your symptoms and take control over your PNES, I suggest to start with "PSYCHOGENIC NON-EPILEPTIC SEIZURES: A GUIDE" by Lorna Myers Ph.D. You'll find it easy to read and what you are experiencing will make more sense.
If your attacks have an impact on your life and you are looking for support to understand the underlying source of your symptoms as well as learning skills to regulate and manage those events, please contact me - Marise Lariviere, LMFT - for a free phone consultation.
You are not alone!